Originally posted 6/8/2004

Excellent Page..Very Informative..Sad that in our time of days now that everyone can't be cured...And we have to lose so many to this nasty disease before they can save em all...
Someday they will..I have faith in that..

Originally posted 6/7/2004

As a father to my son Devon (20 yrs) who has WD. It is good to see that there are loving people out there in the world who provide the time and energy to inform and assist others who are in the same boat. I thank you for the contact. We have been very fortunate our Doctors are really great and diagnosed Devon within days. I also insisted that all sorts of blood tests together with an MRI scan be carried out which I think helped.
Love and light
Tommy
Durban South Africa

A nice site I really like it. I have landed here000000000000000000000000000
bye guys!!

Originally posted 4/21/2004

To all who have shared in Jeff's story on this site:

Wilson's disease did not kill Dawn (Fran Slawnyk's daughter). The uncaring medical establishment did as they did to Jeff. Dawn had been placed in a convalescent hospital where the uncaring staff basically wrote her off. The doctors did not understand Wilson's disease and didn't appear to want to learn anything about it either. She did not receive the care she deserved and now there are three beautiful children and a grieving mother left behind.

This has got to stopp!! The medical community has to be held accountable for not doing everything they can to help a person with a rare disease when they don't understand it, they simply ignore it and any problems that arise are blamed on this "rare" disease. This is what killed my son and this is what killed Dawn! We must continue to educate the medical community on this serious matter. Many doctors are incredible and want to learn everything they can to help their patients, but there are those who are just like a bad car mechanic, only they destroy a person and their family's lives, not cars! Please pray for Dawn and her mother Fran and know that Dawn and Jeff are now in their rightful place watching down on all of us!

Patrick Dirlam

Originally posted 4/16/2004

Thank you very much for sharing this site with me. I am very sorry for your loss. Also thank you for reaching out to Melissa and our family.

Originally posted 4/10/2004

I'm truly sorry for your loss. I found your website while visiting my cousin Brittany's site. I'd never heard of Wilson's Disease until Brittany was diagnosed with it. Your site is wonderful. You have provided a lot of information on your site that may help others. Thank you for sharing your story.

Originally posted 3/12/2004

Thank you for visiting Brittany's website. We were very touched by Jeff's story, and we are truly very sorry for your loss. The website that you created for him is wonderful. We look forward to meeting you Saturday.
Bob and Leanne Cox.

Originally posted 3/9/2004

I'm so sorry for your loss. I'm 33 and have WD. I was diagnosed at 16 and I'm on Galzin. I have no words to express what I felt when I read about your beloved Jeff. I will never forget what I read or what I saw and especially him. I want to be there for my kids. When I get lazy and feel depressed I will think of Jeff.

Originally posted 3/3/2004

I just wanted to tell you how touched I was by your son's legacy. I read alot of your journals and viewed some of your photos. I am so terribly sorry for your loss. I can only imagine being the parent of three myself. My eldest being a close friend of Brittany Cox. Which is how I was led to your son's site. God bless you and thank you for sharing your story. Sincerely, Dawn

Originally posted 2/27/2004

Thank you all for your kind words. I am touched that this site has touched every one of you in a unique way. That is what this tribute to Jeff is all about. It helps me keep his indominable spirit alive and continuously inspiring other people.

Thank you again!!!

Patrick

Originally posted 2/26/2004

Patrick,
Your site is so awesome. My mother (who was dagnosed with Wilson's nearly two years ago) signed your guestbook some time ago, and I receive the e-mails from the Wilson's list. Your and Jeff's message is wonderful. It touched me deeply; made me realize how precious our time really is.

Thank you again!!!

Patrick

Originally posted 2/24/2004

We are freshmens at a high school, and we are truly touched that you shared Jeff's life with all of us. It made us realize that we are lucky! thanks

Originally posted 2/19/2004

This website is so touching. Thank you for sharing!

Originally posted 2/19/2004

You did a wonderful thing with this site. It really touched me. I am so glad I got the chance to see it. It really makes life seem precious. Thank you.

Originally posted 2/19/2004

"One cannot live with sighted eyes and feeling heart and not know and react to the misteries which afflict this world" Lorraine Hansberry

Originally posted 1/14/2004

Patrick,

You are a prime example for others, showing us how to turn your love and grief into positive energy to help others. From what I have read about and seen pics of, this seems like a role reversal, perhaps something a fahter learned from a son instead of vice-versa! You are an inspiration to all.
THANKS FOR SHARING

Originally posted 1/31/2004

Patrick, Thank you for sharing your journey & for being such a wonderful, loving father. Keep looking for the good in every day. Be assured. Jeff will help us through our own WD journey.

Originally posted 1/23/2004

God bless you & the whole family for everything you & Jeff have been through. A person in my family has WD - Doctors gross negligance. My thoughts are with you.

Alice Lawless Slawnyk:
Hello! This is Alice Slawnyk Lawless. I have spoken with few of you. Please, feel free to write to me or call me. 570-746-2054. I would love to hear from all of you. xoxo

Originally posted 1/14/2004

My daughter has WD. Due to Drs. gross negilgance, she is rapidly declining - 3 children -2 are babies, 3 & 8.
God bless all who has & are going through this, especially with family.

Originally posted 12/3/2003

I'm truly touched by the life of Jeff. I thank you for the website because it gave me a better perception of how valuable life is.