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Total Records: 147   Records Viewed Per Page: 20 1 2 3 [4] 5 6 ... 8
Name Comments
87) Shirley  Female
Location:
Yorba Linda, CA
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Tuesday, 30 September 2008 11:19 PM Host: m500e36d0.tmodns.net Write a comment

Thank you for sharing Jeff's story. My son is beginning the WD journey himself and I feel how painful this was for you. You were blessed with such a wonderful son.
86) Chris Pageant  Male
Location:
Minneapolis
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Monday, 22 September 2008 09:46 AM Host: mail2.garlandsinc.com Write a comment

I stumbled accross this site and I am very touched by your story. It is obvious Jeff has a very loving family and I'm sure he can rest in peace until you see him again. God Bless.
85) FRAN  Female
Location:
philadelphia
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Wednesday, 27 August 2008 03:10 AM Host: cache-mtc-ad11.proxy.aol.com Write a comment

:rolleyes: :rolleyes:
thank you again for the pleasure of letting me share this page in jeff's memory and honor it is most important-as i have experience similar and keep you
always in heart from all yoru help-strength-courage and being a friend
i know the ache the heart feels and also know the love and comfort from jeff's heart for your being his dad and there for him-always
God bless you always
84) Richard Sollami  Male
Location:
San Diego, Ca
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Thursday, 14 August 2008 09:13 AM Host: ip72-207-37-180.sd.sd.cox.net Write a comment

Why is'nt assisted suicide an option for the worst cases? This site makes this case in my opinion. I am in the process of getting diagnosed with this and I am not encouraged after reading this site.
Any other opinions?
83) Carol  Female
Location:
Ireland
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Monday, 21 April 2008 04:02 AM Host: cache-los-aa07.proxy.aol.com Write a comment

Thank you for this site Patrick. Jeff's Legacy has touched the hearts of people throughout the world. Thank you for your strength and courage in continuing to help others. Toward a better understanding of this terrible disease. Toward a better future. I know he is watching over you.
Carol.
82) Susan Kuiper  Female
Location:
Australia
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Tuesday, 8 April 2008 05:40 PM Host: 123-2-170-250.static.dsl.dodo.com.au Write a comment

My deepest sympathies for your loss. After reading your journal I cried.
I too have WD, and went from hepatic to neurolgical WD. I live in Australia, and yet it was all the wonderful Doctor's the U.S.A. has, that ended up saving my life. I am now coming up for my 13th year post neurological WD. I also have a younger brother who has WD, he almost died because of non complience of his meds. Thankfully he pulled through.
Thank you for sharing your very sad but touching story.
Once again my deepest sympathies.
Susan Kuiper
81) Fran  Female
Location:
Pennsylvania
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Tuesday, 18 March 2008 01:53 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 2/5/2008
:rolleyes: Patrick-and Linda
I wish I had the pleasure of knowing Jeff personally. I do feel close to him now, meeting his Dad and Linda and having them as honest and kind caring friends to me-even though they had a bad time-they thought of me always with comfort, guidance, and love through my time with my daughter Dawn, who also had WD
GOD BLESS YOU BOTH
and Jeff will always be near.

His baby pictures are most precious.
HIS SIMLE-FOREVER
80) Julie  Female
Location:
Colorado Springs
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Tuesday, 18 March 2008 01:46 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 1/21/2008

Thank you for sharing this touching story of your son. I am a 36 year-old patient with Wilson's and some other medical issues. I have yet to meet another Wilson's patient face-to-face. For years I was told that it was "all in my head." I am just sick and tired of being sick and tired. Thank you for sharing your story, it did my heart well.
79) Jan Culver  Female
Location:
NV
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Tuesday, 18 March 2008 01:43 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 11/12/2007

I saw your web page, it broke my heart. I have Wilson's Disease, was diagnosed at 19 in 1972. They knew so little then so I have a hard time understanding how after all this time Jeff did not make it. Knowing what he went through and what your family went through I can only guess that he was a special, brave and loving young man. God bless you for the sharing such a special person.
78) Fran  Female
Location:
Pennsylvania
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:39 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 11/12/2007

:cool: Hello
At this time of the year with the 2 big HOLIDAYS may you have much happiness and great memories within your heart and for your family.
Hugs
Fran
77) Uncle Bud  Male
Location:
Pacifica, CA
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Tuesday, 18 March 2008 01:36 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 10/10/2007

I am deeply moved by this website honoring Jeff. He truly was a wonderful, cheerful person. You have done a remarkable presentation. My heart goes out to you, as always.
76) Fran  Female
Location:
Pennsylvania
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Tuesday, 18 March 2008 01:34 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 8/2/2007

I am honored and glad to be able to view this wonderful site of your son Jeff! Two hearts makes one of a kind and togetherness always. God Bless you Patrick. Forever in your heart is Jeff. You truly shared your lives and happiness and the father-son bond is always in your memories and heart!

Fran ;-)
75) George Feldmann  Male
Location:
Winnepeg, MB
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Tuesday, 18 March 2008 01:31 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 7/27/2007

Excellent site! Good job! Thanks for all your effort in putting this site back on.
74) Devinder Singh  Male
Location:
Punjab, India
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Tuesday, 18 March 2008 01:29 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 5/5/2007

Patrick the way you have fathered Jeff no body can do. You are a source of inspiration and friend of all.
73) verapetruta2005  Female
Location:
romania
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:28 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 4/16/2005

Heloo to everybody
72) Joann Kaden  Female
Location:
Bishop, CA
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Tuesday, 18 March 2008 01:26 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 4/11/2007

Thank you for sending the link to me Pat. I've gone through almost everything here, sometimes with smiles and sometimes with tears. Jeff was such a beautiful spirit throughout all his short life. It's beyond understanding why he had to suffer this illness with all it's terrible symptoms. He met it bravely and I know he believed he would overcome it right up to the end because he was never one to give up in the face of adversity. Ignorance caused his death...ignorance and almost a criminal lack of caring from some medical people. A bright light went out when Jeff drew his last breath and the world lost a wonderful young man. I will always miss him, just as I will always love him.
Jeff's loving grandmother,
Joann
71) Ars  Male
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:21 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 6/26/2005

Great site! Well done and informative. Keep up the good work.
70) Sue Noe 99  Female
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Tuesday, 18 March 2008 01:19 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 6/24/2005

Thanks for nice site! Best regards!
69) Brittney  Female
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:18 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 6/24/2005

Today is the big day! I hope the walk is even more successful then last years. Our prayers are always with you.
68) Sabrina  Female
Location:
russia
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Tuesday, 18 March 2008 01:15 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 6/4/2005

very intersting site, thank you
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