Hi Patrick,

I was very moved going through Jeff's legacy and could indentify with your pain and helplessness since I went through similar experience.I lost my daughter to WD when she was 13 years old,and much through the negligence and ignorance of the doctor. If it helps;be confident in the knowledge that they have progressed to a better world and are free from the bondage and sufferings of this world and wait for us at the gates of heaven to live together forever in happiness.
May God bless you & your family.

Rajesh.

Uncle Pat,

I want to tell you how sorry I am that I was not there with you all through this. I never knew this site was out there, I guess that's what happens when we don't keep in touch as much as we should. I loved Jeff more than anyone will ever know. I never knew how bad it was at the end. I never understood what horrible pain Jeff and all of you were going through. Dad has been asking me to get tested every since this happened but I am not a person that goes to the doctor for anything, I promise you, I will get tested. If not for me, for the chance that I could be passing something on to my children. I would really like you to finish the book, I think it could benefit so many people that have to face this disease. You are a great man, and a wonderful father! I know how much he meant to you and how much you meant to him. I love and miss you all, I would like to get back in touch with everyone. Please write back some time.
Your nephew Mike

I am so sorry to hear that Jeff passed away. I dated him in High School. The last time we talked was in I believe 1997. He still lived with you in Clovis. He also gave me a kitten way back, that I named Tweekers. He was orange and white with really long whiskers. I can not believe Jeff is gone. He was such a loving and caring guy, he is greatly missed.

Thank you for sharing Jeff's story. My son is beginning the WD journey himself and I feel how painful this was for you. You were blessed with such a wonderful son.

I stumbled accross this site and I am very touched by your story. It is obvious Jeff has a very loving family and I'm sure he can rest in peace until you see him again. God Bless.

thank you again for the pleasure of letting me share this page in jeff's memory and honor it is most important-as i have experience similar and keep you
always in heart from all yoru help-strength-courage and being a friend
i know the ache the heart feels and also know the love and comfort from jeff's heart for your being his dad and there for him-always
God bless you always

Why is'nt assisted suicide an option for the worst cases? This site makes this case in my opinion. I am in the process of getting diagnosed with this and I am not encouraged after reading this site.
Any other opinions?

Thank you for this site Patrick. Jeff's Legacy has touched the hearts of people throughout the world. Thank you for your strength and courage in continuing to help others. Toward a better understanding of this terrible disease. Toward a better future. I know he is watching over you.
Carol.

My deepest sympathies for your loss. After reading your journal I cried.
I too have WD, and went from hepatic to neurolgical WD. I live in Australia, and yet it was all the wonderful Doctor's the U.S.A. has, that ended up saving my life. I am now coming up for my 13th year post neurological WD. I also have a younger brother who has WD, he almost died because of non complience of his meds. Thankfully he pulled through.
Thank you for sharing your very sad but touching story.
Once again my deepest sympathies.
Susan Kuiper

Originally posted 2/5/2008
Patrick-and Linda
I wish I had the pleasure of knowing Jeff personally. I do feel close to him now, meeting his Dad and Linda and having them as honest and kind caring friends to me-even though they had a bad time-they thought of me always with comfort, guidance, and love through my time with my daughter Dawn, who also had WD
GOD BLESS YOU BOTH
and Jeff will always be near.

His baby pictures are most precious.
HIS SIMLE-FOREVER

Originally posted 1/21/2008

Thank you for sharing this touching story of your son. I am a 36 year-old patient with Wilson's and some other medical issues. I have yet to meet another Wilson's patient face-to-face. For years I was told that it was "all in my head." I am just sick and tired of being sick and tired. Thank you for sharing your story, it did my heart well.

Originally posted 11/12/2007

I saw your web page, it broke my heart. I have Wilson's Disease, was diagnosed at 19 in 1972. They knew so little then so I have a hard time understanding how after all this time Jeff did not make it. Knowing what he went through and what your family went through I can only guess that he was a special, brave and loving young man. God bless you for the sharing such a special person.

Originally posted 11/12/2007

Hello
At this time of the year with the 2 big HOLIDAYS may you have much happiness and great memories within your heart and for your family.
Hugs
Fran

Originally posted 10/10/2007

I am deeply moved by this website honoring Jeff. He truly was a wonderful, cheerful person. You have done a remarkable presentation. My heart goes out to you, as always.

Originally posted 8/2/2007

I am honored and glad to be able to view this wonderful site of your son Jeff! Two hearts makes one of a kind and togetherness always. God Bless you Patrick. Forever in your heart is Jeff. You truly shared your lives and happiness and the father-son bond is always in your memories and heart!

Fran

Originally posted 7/27/2007

Excellent site! Good job! Thanks for all your effort in putting this site back on.

Originally posted 5/5/2007

Patrick the way you have fathered Jeff no body can do. You are a source of inspiration and friend of all.

Originally posted 4/16/2005

Heloo to everybody

Originally posted 4/11/2007

Thank you for sending the link to me Pat. I've gone through almost everything here, sometimes with smiles and sometimes with tears. Jeff was such a beautiful spirit throughout all his short life. It's beyond understanding why he had to suffer this illness with all it's terrible symptoms. He met it bravely and I know he believed he would overcome it right up to the end because he was never one to give up in the face of adversity. Ignorance caused his death...ignorance and almost a criminal lack of caring from some medical people. A bright light went out when Jeff drew his last breath and the world lost a wonderful young man. I will always miss him, just as I will always love him.
Jeff's loving grandmother,
Joann

Originally posted 6/26/2005

Great site! Well done and informative. Keep up the good work.