Very Inspiring (:

I am very sorry for your loss...i hope your beloved son is in a better place now. Hopefully someday they will find a way to cure and prevent WD

saying hello to Jeff's dad
and keeping both in my heart-as Patrick has helped and been with my pain also
GOD bless you Patrick
Your care has been a great help
THANK YOU

Jeffs birthday has come and left--a new year-always in your heart

Hi and Thank You so much for sharing everything! I am waiting for test results to confirm if my 13 year old son has WD. I've had the big issues with doctors and big ca ins also, thank you again, my strength has been wearing but you have helped replenish it!

I know you are in heaven and are looking down at your family with love in your heart..your story made me cry, but know it is not in vain that you have left this world that filled you with the pain and suffering you had..your heavenly father knew it was time to call you home..I know this will help many people and so many were blessed to know you..i did not know you but was looking up this page..I pray for healing in your mom and dads life and others who loved you..and maybe they will make a page on facebook so many can talk..I am ill but doctors cannot seem to figure things out. Knowing this is what you went thru and know that you are missed i am sure by so many..they will see you again..running, laughing and in no pain..r.i.p. sincerly linda

It's been 10 years son. It's hard to believe and hard to deal with but you've helped so many people over the years since you've been gone that your leaving us was not wasted. You've inspired many people with and without Wilson's Disease since the inception of this website and you will keep inspiring people as long as it exists!

I love you Jeff. I miss you tremendously. I hope to see you when my time comes!

Dad

hello Patrick
A geat way to show tribute to Jeff
and to thank you for all you support
and being there
Fran
YEP--me again, always

My son Nick has WD and was diagnosed with it at age 13 1/2. He has cirrhosis of the liver. I wish that your son had been diagnosed early enough for him to continue his life for many more years! I hope that some day there will be a routine test for WD and that every child is screened. It sounds like his time on earth included some very happy times.

My step-son has Wilson's Disease. He has the rings in his eyes and is currently on medication. I know for sure he is taking Zinc but the doctor's say that the medication isn't working. He was just diagnosed at 16 years old. His blood platelets are too low for him to be put on the liver transplant list. He does have cirrosis of the liver. What can we do? thank you

I am sorry for your loss and pain. Jeff sounds remarkable. Your letters to him are wonderful. I am sure he is in the winds around you.

Hi.
I'm currently working on a project on wilsons disease, and would love any information you have about it.
Andrew4ca@yahoo.com

I am doing a anatomy and physiology report on Wilson disease. Very sorry for your loss.

Hello Patrick
Another year already
THANK YOU-FOR THIS PAGE AND COMFORT YOU HAVE GIVEN TO ALL, FROM YOUR OWN

THIS IS FOR JEFF--A MEMORIAL TYPE
BLESSING FOR ALL AND YOU

I also have wison diease , I was diagnosed at 37 years old, I had never been so horribly sick in my life, somehow I am still alive and doing decent, good days and bad days , guess what I am saying is that more than most I know exactly what its about . I am a miricle, the doctors dont know how I am still alive.I am so sorry for your loss.living with it I think at times is worse than dying with it .it it a horrible diease, for anyone to live with or die with .

I just learned of this page today. I learned of Jeff's passing a year ago. But was not sure on the details. He was a great friend and really helped to keep me grounded when I was about to fly off the end... I'm so sorry we lost touch when we did. He is missed so very much. Thank you Pat for putting this page together.
Peace.
-Rob.

Im sorry to say I have just received word of Jeff's passing, he was one of my best high school friends and help me walk the right path, I honestly would not have made it without him as a friend, my world is a bit colder now. I am truely sorry for your loss.

An amazing revelation. Thank you

Pat, Jeff was such an awesome friend. I am so sorry for your loss.

2 years ago, I prey to all saints to protect me by Staphylococcus aureus who want to EAT ME,... because I have 2 little girls and they he hear me.
I was a very lucky guy until my best friend died in my arms...I lit a candle and then died in my arms...
Is the first time spoke publicly about it and already I feel more calm ..
There is so much to do in life ... to make them for them ... stay in peace

so sorry for your loss, easter this year my 31 year old nephew lost his life to wilson's disease. he left behind a wife and 4 small children. he died 1 week after going into sudden liver failure. i wonder if i am a carrier there has been a lot of ms in our family one girl it developed in her speech and being able to eat. such a strange disease, i am amazed as it is so rare that it has touched so many lives. i am so sorry for your loss you have put together a wonderful tribute to your son.