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Thursday, 21 June 2018 02:55 AM
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Total Records: 146   Records Viewed Per Page: 20 [1] 2 3 ... 8
Name Comments
146) Katelynn Melton  Female
Location:
Shell Lake, Wisconsin
IP logged Mozilla/5.0 (X11; CrOS x86_64 10176.76.0) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/64.0.3282.190 Safari/537.36
Tuesday, 20 March 2018 06:35 PM Host: 207-118-217-202.dyn.centurytel.net Write a comment

I'm doing a project on the Wilson disease, I am so sorry to hear about this story. Reading through this deep story I just feel melancholy. I know this must be hard. I will pray for you :)

Thank you
145) Dhananjay Kulkarni  Male
Location:
Mumbai, India
IP logged Mozilla/5.0 (Macintosh; Intel Mac OS X 10_10_5) AppleWebKit/603.3.8 (KHTML, like Gecko) Version/10.1.2 Safari/603.3.8
Sunday, 25 February 2018 09:13 AM IP: 49.33.87.247 Write a comment

Really Sad..!

It is a great loss.

May almighty god give us courage to bear this loss.
144) fran  Female
Location:
jersey
IP logged Mozilla/5.0 (Windows NT 6.3; WOW64; rv:55.0) Gecko/20100101 Firefox/55.0
Thursday, 21 September 2017 06:44 AM Host: c-73-29-164-117.hsd1.nj.comcast.net Write a comment

belated happy birthday Jeff
i feel i know you already and wish i had met you
along with my 2 daughters
never forgotten
143) fran  Female
Location:
jersey
IP logged Mozilla/5.0 (Windows NT 6.3; WOW64; rv:55.0) Gecko/20100101 Firefox/55.0
Thursday, 21 September 2017 06:41 AM Host: c-73-29-164-117.hsd1.nj.comcast.net Write a comment

a little late, but HAPPY BIRTHDAY JEFF
I DO WISH TI HAVE KNOWN YOU AND FOR MY 2 DAUGHTERS TO KWOW YOU ALSO
I HAVE HEARD SO MUCH OF YOU
YOU ARE GREATLY MISSED
142) Talat  Female
Location:
ann Arbor, MI
IP logged Mozilla/5.0 (Windows NT 6.1) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/56.0.2924.87 Safari/537.36
Tuesday, 28 March 2017 09:22 AM Host: c-68-62-101-121.hsd1.mi.comcast.net Write a comment

Jeff was very special and he is in a better place!
141) Anna  Female
Location:
Ireland
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/55.0.2883.87 Safari/537.36
Thursday, 2 February 2017 04:13 AM Host: 95-44-44-26-dynamic.agg2.dbn.cld-dbn.eircom.net Write a comment

I am so sorry for your loss!

Jeff's story moved me deeply, my eyes welling with tears and my heart with sympathy for you and tenderness for a young life lost!
...and deep indignation at human ignorance
140) Patrick Dirlam  Male
Location:
Arroyo Grande, CA
IP logged Mozilla/5.0 (Windows NT 10.0; Win64; x64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/54.0.2840.71 Safari/537.36
Thursday, 10 November 2016 09:07 AM IP: 162.251.190.86 Write a comment

Wow! Today is your 40th birthday Jeff. I wish you could be here for this milestone event. Your life was too short but in your 25 years, you influenced a lot of people and made a difference for the better in their lives! I know many people will never forget you and your contribution to their lives. You will never be famous but you will live on in the memories of those who knew you.

God bless you Jeff and I love you always and forever!

Dad
139) Judi Newton  Female
Location:
United States
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/42.0.2311.135 Safari/537.36
Monday, 4 May 2015 11:55 PM Host: 174-134-199-4.res.bhn.net Write a comment

Thank you for sharing your sons story with me and telling me about Wilson's disease and thank you for listening to me share about my nephew and DIPG.
138) Louise Le Clair  Female
Location:
NB Canada
IP logged Mozilla/5.0 (compatible; MSIE 10.0; Windows NT 6.2; Win64; x64; Trident/6.0)
Monday, 8 December 2014 04:19 PM Host: nwcsnbsc00w-047054080084.pppoe-dynamic.High-Speed.nb.bellali Write a comment

I am so sorry for your loss,my husband suffers also from wilsons disease since the age of 15,It is a terrible disease but with the help of medication he is living a almost normal life but with a slight tremor,hopefully you will find the strength to get through this terrible ordeal..
137) Patrick Dirlam  Male
Location:
Arroyo Grande, CA
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:30.0) Gecko/20100101 Firefox/30.0
Sunday, 29 June 2014 04:15 PM IP: 162.251.191.98 Write a comment

SPAMMERS BEWARE! I have had it with all of you and your ip address is now forwarded to your ISP! Your posts will never be seen on this guestbook so don't even waste your time. This is a memorial site in honor of my son -not somewhere to advertise shoes or your blog!
136) Patrick Dirlam  Male
Location:
Arroyo Grande, CA
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:28.0) Gecko/20100101 Firefox/28.0
Thursday, 24 April 2014 08:15 AM Host: 162-251-191-98.surfnetc.com Write a comment

It's been 12 years now Jeff and still feels like yesterday! I know you have, in some small way, helped many who visited this site either by the information it contains or by your story of strength and compassion against this horrible disease.

I love you son and hope you will be waiting for me to guide me to the glorious afterlife, whatever that may be!

Dad
135) Kelly Rosvold  Male
Location:
Kelowna, BC, Canada
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/30.0.1599.101 Safari/537.36
Thursday, 14 November 2013 04:29 PM IP: 207.102.139.1 Write a comment

I read some of your story and saw some of your pictures of your son. Thank you for sharing your story. My 25 year old daughter was diagnosed 2 weeks ago. The neurological damage is evident and she is in hospital getting Penicillamine/Zinc treatment. Your story scares me enough that I will question the doctors, again, about why Trientine isn't being used. So sorry about your son's death. Take care.
134) gerry  Male
Location:
nova scotia
IP logged Mozilla/5.0 (compatible; MSIE 10.0; Windows NT 6.1; WOW64; Trident/6.0)
Saturday, 5 October 2013 05:30 PM Host: dhcp-e0-69-95-da-23-85.cpe.xcountry.tv Write a comment

Hi my name is Gerry and My oldest daughter and I both have wilson's, we recently where diagnosed in the past four weeks with this disease , I have had severe symptoms for six years, and my daughter for two. I'm sure jeff was a great guy , sorry for your loss, all the best in the future, Thank you
133) Rebecca Thomasson 
Location:
United States
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/29.0.1547.62 Safari/537.36
Wednesday, 4 September 2013 07:46 AM IP: 69.27.135.86 Write a comment

Thanks for talking to me. You have suffered an overwhelming loss and are still helping people cope with their problems. God bless you.
132) FRAN 
Location:
nj
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; Trident/5.0)
Monday, 19 August 2013 09:01 AM IP: 209.212.1.150 Write a comment

:cool: a wonderful memorial site
in honor of Jeff
peace=comfort=love and joy to his dad and family
131) FRAN  Female
Location:
new jersey
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; Trident/5.0)
Monday, 19 August 2013 08:56 AM IP: 209.212.1.150 Write a comment

:-) THINKING OF YOU ALL ON THIS SPECIAL TRIP TO YOSEMITE
FOR YOU PATRICK--WHERE YOUR HEART WILL UNITE WITH JEFF\PEACE-COMFORT AND JOY TO YOU
LET THERE BE PEACE

GOD BLESS ALL
130) Maria  Female
Location:
Monroe, Wa
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729; .NET4.0C; InfoPath.3)
Wednesday, 24 April 2013 11:00 AM Host: 50-200-77-134-static.hfc.comcastbusiness.net Write a comment

Very Inspiring (:
129) Sanjay  Male
Location:
NY
IP logged Mozilla/5.0 (Macintosh; Intel Mac OS X 10.7; rv:19.0) Gecko/20100101 Firefox/19.0
Friday, 12 April 2013 10:54 AM Host: pool-173-63-242-210.nwrknj.fios.verizon.net Write a comment

I am very sorry for your loss...i hope your beloved son is in a better place now. Hopefully someday they will find a way to cure and prevent WD
128) Fran  Female
Location:
new jersey
IP logged Mozilla/4.0 WebTV/2.6 (compatible; MSIE 4.0)
Monday, 25 February 2013 03:34 AM Host: proxy-3252.bay.webtv.net Write a comment

saying hello to Jeff's dad
and keeping both in my heart-as Patrick has helped and been with my pain also
GOD bless you Patrick
Your care has been a great help
THANK YOU

Jeffs birthday has come and left--a new year-always in your heart
127) Rose  Female
IP logged Mozilla/5.0 (iPad; CPU OS 6_0 like Mac OS X) AppleWebKit/536.26 (KHTML, like Gecko) Version/6.0 Mobile/10A403 Safari/8536.25
Thursday, 1 November 2012 04:06 PM Host: mobile-166-137-208-046.mycingular.net Write a comment

Hi and Thank You so much for sharing everything! I am waiting for test results to confirm if my 13 year old son has WD. I've had the big issues with doctors and big ca ins also, thank you again, my strength has been wearing but you have helped replenish it! :heart:
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